Parent Experience in Neonatal Hospitalization in Poland: A Cross-Sectional Pilot Study Using NSS-8 and PEC Frameworks
Parent Experience in Neonatal Hospitalization in Poland: A Cross-Sectional Pilot Study Using NSS-8 and PEC Frameworks
StatusVoR
Alternative title
Authors
Komisarek, Oskar
Matthews-Kozanecka, Maja
Wiecheć, Katarzyna
Szczapa, Tomasz
Kasperkowicz, Joanna
Matthews-Brzozowska, Teresa
Daroszewski, Przemysław
Samborski, Włodzimierz
Mojs, Ewa
Malak, Roksana
Monograph
Monograph (alternative title)
Date
2025-10-22
Publisher
Journal title
Journal of Clinical Medicine
Issue
21
Volume
14
Pages
Pages
1-10
ISSN
2077-0383
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Access date
2025-10-25
Abstract PL
Abstract EN
Background: Parent-reported experience in neonatal units is a key but under-measured dimension of family-centred care in Poland. We piloted a brief parent-experience questionnaire informed by the Neonatal Satisfaction Survey (NSS-8) and communication constructs from the Parents’ Experiences of Communication in Neonatal Care (PEC) to describe in-hospital experience and identify actionable targets for improvement. Methods: Observational, cross-sectional pilot at a Polish tertiary centre (September–November 2021). Parents of hospitalized neonates completed a 21-item survey covering educational materials, medical care/communication, parental stress/confidence, hospitalization details, and sociodemographics. Analyses were descriptive with item-wise denominators (n = 32–46). Results: Forty-six parents participated. Educational materials were rated very highly: parental guide 9.8/10 (n = 46); brochure readability 10/10 (n = 46), indicating ceiling effects. Perceptions of care and communication were favourable: overall care 4.47/5, physician concern 4.62/5, ward conditions 4.47/5, explanation of test indications 4.23/5, and adequacy/understandability of information 4.35/5 (each n = 35; medians = 5). Despite this, parental stress/anger/insomnia was moderate (3.00/5; n = 35), while confidence in basic home care remained high (4.10/5; n = 35). Following discharge, 17/46 (37.0%) sought specialist consultations. Length of stay (n = 34) had a median of 1 day (0–4). Reasons for admission most frequently included multisymptom presentations (20/46, 43.5%); respiratory (8.7%) and infectious (6.5%) causes were less common. Conclusions: Parents reported very positive care and communication alongside persistent emotional burden and substantial post-discharge information needs. Findings support pairing a broad experience framework with a focused communication module, standardizing discharge communication (including a 48–72 h “bridging” contact), and progressing to a multicentre psychometric validation. This exploratory pilot was not a formal validation study; mixed scales and item-wise missingness should guide instrument refinement.
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Keywords PL
Keywords EN
neonatal intensive care
parent-reported experience
PREMs
family-centred care
clinical communication
NSS-8
PEC
discharge communication bundle
caregiver stress
quality improvement
post-discharge follow-up
Poland
pilot study
parent-reported experience
PREMs
family-centred care
clinical communication
NSS-8
PEC
discharge communication bundle
caregiver stress
quality improvement
post-discharge follow-up
Poland
pilot study
Keywords other
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