Parent Experience in Neonatal Hospitalization in Poland: A Cross-Sectional Pilot Study Using NSS-8 and PEC Frameworks

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cris.lastimport.scopus2025-10-26T04:10:12Z
dc.abstract.enBackground: Parent-reported experience in neonatal units is a key but under-measured dimension of family-centred care in Poland. We piloted a brief parent-experience questionnaire informed by the Neonatal Satisfaction Survey (NSS-8) and communication constructs from the Parents’ Experiences of Communication in Neonatal Care (PEC) to describe in-hospital experience and identify actionable targets for improvement. Methods: Observational, cross-sectional pilot at a Polish tertiary centre (September–November 2021). Parents of hospitalized neonates completed a 21-item survey covering educational materials, medical care/communication, parental stress/confidence, hospitalization details, and sociodemographics. Analyses were descriptive with item-wise denominators (n = 32–46). Results: Forty-six parents participated. Educational materials were rated very highly: parental guide 9.8/10 (n = 46); brochure readability 10/10 (n = 46), indicating ceiling effects. Perceptions of care and communication were favourable: overall care 4.47/5, physician concern 4.62/5, ward conditions 4.47/5, explanation of test indications 4.23/5, and adequacy/understandability of information 4.35/5 (each n = 35; medians = 5). Despite this, parental stress/anger/insomnia was moderate (3.00/5; n = 35), while confidence in basic home care remained high (4.10/5; n = 35). Following discharge, 17/46 (37.0%) sought specialist consultations. Length of stay (n = 34) had a median of 1 day (0–4). Reasons for admission most frequently included multisymptom presentations (20/46, 43.5%); respiratory (8.7%) and infectious (6.5%) causes were less common. Conclusions: Parents reported very positive care and communication alongside persistent emotional burden and substantial post-discharge information needs. Findings support pairing a broad experience framework with a focused communication module, standardizing discharge communication (including a 48–72 h “bridging” contact), and progressing to a multicentre psychometric validation. This exploratory pilot was not a formal validation study; mixed scales and item-wise missingness should guide instrument refinement.
dc.affiliationZakład Psychologii Klinicznej
dc.affiliationWydział Psychologii i Prawa w Poznaniu
dc.affiliationInstytut Psychologii
dc.contributor.authorKomisarek, Oskar
dc.contributor.authorMatthews-Kozanecka, Maja
dc.contributor.authorWiecheć, Katarzyna
dc.contributor.authorSzczapa, Tomasz
dc.contributor.authorKasperkowicz, Joanna
dc.contributor.authorMatthews-Brzozowska, Teresa
dc.contributor.authorDaroszewski, Przemysław
dc.contributor.authorSamborski, Włodzimierz
dc.contributor.authorMojs, Ewa
dc.contributor.authorMalak, Roksana
dc.date.access2025-10-25
dc.date.accessioned2025-10-25T07:35:17Z
dc.date.available2025-10-25T07:35:17Z
dc.date.created2025-10-21
dc.date.issued2025-10-22
dc.description.abstract<jats:p>Background: Parent-reported experience in neonatal units is a key but under-measured dimension of family-centred care in Poland. We piloted a brief parent-experience questionnaire informed by the Neonatal Satisfaction Survey (NSS-8) and communication constructs from the Parents’ Experiences of Communication in Neonatal Care (PEC) to describe in-hospital experience and identify actionable targets for improvement. Methods: Observational, cross-sectional pilot at a Polish tertiary centre (September–November 2021). Parents of hospitalized neonates completed a 21-item survey covering educational materials, medical care/communication, parental stress/confidence, hospitalization details, and sociodemographics. Analyses were descriptive with item-wise denominators (n = 32–46). Results: Forty-six parents participated. Educational materials were rated very highly: parental guide 9.8/10 (n = 46); brochure readability 10/10 (n = 46), indicating ceiling effects. Perceptions of care and communication were favourable: overall care 4.47/5, physician concern 4.62/5, ward conditions 4.47/5, explanation of test indications 4.23/5, and adequacy/understandability of information 4.35/5 (each n = 35; medians = 5). Despite this, parental stress/anger/insomnia was moderate (3.00/5; n = 35), while confidence in basic home care remained high (4.10/5; n = 35). Following discharge, 17/46 (37.0%) sought specialist consultations. Length of stay (n = 34) had a median of 1 day (0–4). Reasons for admission most frequently included multisymptom presentations (20/46, 43.5%); respiratory (8.7%) and infectious (6.5%) causes were less common. Conclusions: Parents reported very positive care and communication alongside persistent emotional burden and substantial post-discharge information needs. Findings support pairing a broad experience framework with a focused communication module, standardizing discharge communication (including a 48–72 h “bridging” contact), and progressing to a multicentre psychometric validation. This exploratory pilot was not a formal validation study; mixed scales and item-wise missingness should guide instrument refinement.</jats:p>
dc.description.accesstimeafter_publication
dc.description.issue21
dc.description.physical1-10
dc.description.versionfinal_published
dc.description.volume14
dc.identifier.doi10.3390/jcm14217486
dc.identifier.issn2077-0383
dc.identifier.urihttps://share.swps.edu.pl/handle/swps/1891
dc.languageen
dc.pbn.affiliationpsychologia
dc.rightsCC-BY
dc.rights.questionYes_rights
dc.share.articleOPEN_JOURNAL
dc.subject.enneonatal intensive care
dc.subject.enparent-reported experience
dc.subject.enPREMs
dc.subject.enfamily-centred care
dc.subject.enclinical communication
dc.subject.enNSS-8
dc.subject.enPEC
dc.subject.endischarge communication bundle
dc.subject.encaregiver stress
dc.subject.enquality improvement
dc.subject.enpost-discharge follow-up
dc.subject.enPoland
dc.subject.enpilot study
dc.swps.sciencecloudsend
dc.titleParent Experience in Neonatal Hospitalization in Poland: A Cross-Sectional Pilot Study Using NSS-8 and PEC Frameworks
dc.title.journalJournal of Clinical Medicine
dc.typeJournalArticle
dspace.entity.typeArticle