Adapting a Participatory Group Programme for Caregivers of Children with Complex Neurodisability from Low-, Middle-Income Countries to a High-Income Setting: Moving from “Baby Ubuntu” to “Encompass”

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cris.lastimport.scopus2025-12-07T04:14:11Z
dc.abstract.enThe “Baby Ubuntu” programme is a well-established, low-cost, community-based intervention to support caregivers of children with complex neurodisability, like cerebral palsy, in low- and middle-income country (LMIC) contexts. This process-focused paper describes our utilisation of the ADAPT guidance to adapt “Baby Ubuntu” for use in ethnically and linguistically diverse, and economically deprived urban boroughs in the United Kingdom (UK). The process was guided by an adaptation team, including parents with lived experience, who explored the rationale for the intervention from local perspectives and its fit for this UK community. Through qualitative interviews and co-creation strategies, the perspectives of caregivers and healthcare professionals substantially contributed to the “Encompass” programme theory, drafting the content, and planning the delivery. Ten modules were co-produced with various topics, based on the “Baby Ubuntu” modules, to be co-facilitated by a parent with lived experience and a healthcare professional. The programme is participatory, allowing caregivers to share information, problem solve, and form supportive peer networks. The “Encompass” programme is an example of a “decolonised healthcare innovation”, as it aims to transfer knowledge and solutions developed in low- and middle-income countries to a high-income context like the UK. Piloting of the new programme is underway.
dc.affiliationWydział Psychologii we Wrocławiu
dc.affiliationInstytut Psychologii
dc.contributor.authorPrest, Kirsten
dc.contributor.authorBarnicot, Kirsten
dc.contributor.authorHurt. Catherine
dc.contributor.authorBadenhorst, Frances
dc.contributor.authorBorek, Aleksandra
dc.contributor.authorWhyte, Melanie
dc.contributor.authorHarniess, Phillip
dc.contributor.authorJannath, Alea
dc.contributor.authorLassman, Rachel
dc.contributor.authorMorris, Christopher
dc.contributor.authorOsbourne, Rachel
dc.contributor.authorSmythe, Tracey
dc.contributor.authorTann, Cally J.
dc.contributor.authorThomas, Keely
dc.contributor.authorWilson, Emma
dc.contributor.authorHarden, Angela
dc.contributor.authorHeys, Michelle
dc.date.access2025-07-18
dc.date.accessioned2025-09-12T10:31:12Z
dc.date.available2025-09-12T10:31:12Z
dc.date.created2025-07-09
dc.date.issued2025-07-18
dc.description.abstract<jats:p>The “Baby Ubuntu” programme is a well-established, low-cost, community-based intervention to support caregivers of children with complex neurodisability, like cerebral palsy, in low- and middle-income country (LMIC) contexts. This process-focused paper describes our utilisation of the ADAPT guidance to adapt “Baby Ubuntu” for use in ethnically and linguistically diverse, and economically deprived urban boroughs in the United Kingdom (UK). The process was guided by an adaptation team, including parents with lived experience, who explored the rationale for the intervention from local perspectives and its fit for this UK community. Through qualitative interviews and co-creation strategies, the perspectives of caregivers and healthcare professionals substantially contributed to the “Encompass” programme theory, drafting the content, and planning the delivery. Ten modules were co-produced with various topics, based on the “Baby Ubuntu” modules, to be co-facilitated by a parent with lived experience and a healthcare professional. The programme is participatory, allowing caregivers to share information, problem solve, and form supportive peer networks. The “Encompass” programme is an example of a “decolonised healthcare innovation”, as it aims to transfer knowledge and solutions developed in low- and middle-income countries to a high-income context like the UK. Piloting of the new programme is underway.</jats:p>
dc.description.accesstimeat_publication
dc.description.issue7
dc.description.physical1-26
dc.description.versionfinal_published
dc.description.volume22
dc.identifier.doi10.3390/ijerph22071144
dc.identifier.issn1660-4601
dc.identifier.urihttps://share.swps.edu.pl/handle/swps/1780
dc.identifier.weblinkhttps://www.mdpi.com/1660-4601/22/7/1144
dc.languageen
dc.pbn.affiliationpsychologia
dc.rightsCC-BY
dc.rights.questionYes_rights
dc.rights.urihttps://creativecommons.org/licenses/by/3.0
dc.share.articleOPEN_JOURNAL
dc.subject.encomplex neurodisability
dc.subject.encerebral palsy
dc.subject.enchild disability
dc.subject.encaregivers
dc.subject.enfamily-centred care
dc.subject.encommunity-based interventions
dc.subject.ensupport groups
dc.subject.enintervention adaptation
dc.subject.enpeer support
dc.subject.enparticipatory approach
dc.swps.sciencecloudsend
dc.titleAdapting a Participatory Group Programme for Caregivers of Children with Complex Neurodisability from Low-, Middle-Income Countries to a High-Income Setting: Moving from “Baby Ubuntu” to “Encompass”
dc.title.journalInternational Journal of Environmental Research and Public Health
dc.typeJournalArticle
dspace.entity.typeArticle