Do I have symptoms of dementia - a discursive study of awareness and shame among people with advanced dementia

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cris.lastimport.scopus2025-04-03T03:11:17Z
dc.abstract.enBackground and Objectives: This study explores the narrated experiences of individuals with advanced stages of late-onset dementia, focusing on their diagnosis awareness. Such framing is motivated by two reasons. Firstly, there is a lack of consensus regarding the prevalence of anosognosia among people with dementia. Secondly, research on anosognosia often neglects to address the important issues of shame and stigma associated with receiving a dementia diagnosis. Research Design and Methods: For this qualitative study, a total of 27 participants ranging in age from 66 to 94 were involved. The data collected were analyzed using textual-oriented discourse analysis. Results: Our findings indicated that individuals with dementia struggled to comprehend the medical terminology used to describe their experiences within biomedical standards. The interviewees utilized five negative discourses on dementia, which shaped their attitudes toward the condition and people diagnosed with it. These discourses depicted dementia as an illness, negative ageing, a devaluation, a burden, and a life tragedy. Moreover, study participants did not outright reject the diagnosis but rather negotiated its acceptance within the context of shame associated with dementia. Discussion and Implications: The concept of anosognosia can serve as a mechanism of social control and stigmatization of people with dementia within the dominant biomedical discourse.
dc.affiliationWydział Psychologii
dc.contributor.authorKłosińska, Urszula
dc.contributor.authorLeszko, Magdalena
dc.date.access2025-06-05
dc.date.accessioned2024-09-02T07:35:43Z
dc.date.available2024-09-02T07:35:43Z
dc.date.created2024-06-05
dc.date.issued2024-08
dc.description.abstract<jats:title>Abstract</jats:title> <jats:sec> <jats:title>Background and Objectives</jats:title> <jats:p>This study explores the narrated experiences of individuals with advanced stages of late-onset dementia, focusing on their diagnosis awareness. Such framing is motivated by two reasons. Firstly, there is a lack of consensus regarding the prevalence of anosognosia among people with dementia. Secondly, research on anosognosia often neglects to address the important issues of shame and stigma associated with receiving a dementia diagnosis.</jats:p> </jats:sec> <jats:sec> <jats:title>Research Design and Methods</jats:title> <jats:p>For this qualitative study, a total of 27 participants ranging in age from 66 to 94 were involved. The data collected were analyzed using textual-oriented discourse analysis.</jats:p> </jats:sec> <jats:sec> <jats:title>Results</jats:title> <jats:p>Our findings indicated that individuals with dementia struggled to comprehend the medical terminology used to describe their experiences within biomedical standards. The interviewees utilized five negative discourses on dementia, which shaped their attitudes toward the condition and people diagnosed with it. These discourses depicted dementia as an illness, negative ageing, a devaluation, a burden, and a life tragedy. Moreover, study participants did not outright reject the diagnosis but rather negotiated its acceptance within the context of shame associated with dementia.</jats:p> </jats:sec> <jats:sec> <jats:title>Discussion and Implications</jats:title> <jats:p>The concept of anosognosia can serve as a mechanism of social control and stigmatization of people with dementia within the dominant biomedical discourse.</jats:p> </jats:sec>
dc.description.accesstimeafter_publication
dc.description.issue8
dc.description.physical1-31
dc.description.versionfinal_author
dc.description.volume64
dc.identifier.doi10.1093/geront/gnae067
dc.identifier.eissn1758-5341
dc.identifier.issn0016-9013
dc.identifier.urihttps://share.swps.edu.pl/handle/swps/717
dc.identifier.weblinkhttps://academic.oup.com/gerontologist/advance-article-abstract/doi/10.1093/geront/gnae067/7687875?redirectedFrom=fulltext
dc.languageen
dc.pbn.affiliationpsychologia
dc.rightsEmbargo
dc.rights.explanationCzasopismo płatne
dc.rights.questionYes_rights
dc.share.articleOPEN_REPOSITORY
dc.subject.endementia
dc.subject.enadvanced stage
dc.subject.enawareness
dc.subject.enanosognosia
dc.subject.enshame
dc.subject.encritical discourse analysis
dc.swps.sciencecloudsend
dc.titleDo I have symptoms of dementia - a discursive study of awareness and shame among people with advanced dementia
dc.title.journalThe Gerontologist
dc.typeJournalArticle
dspace.entity.typeArticle