Parent and Caregiver Perspectives: The Lived Experience of Raising a Child with Misophonia

StatusVoR
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Authors
Molthrop, Kelly A.
Gates, Emily C.
Guzick, Andrew G.
Siepsiak, Marta
Rosenthal, M. Zachary
Monograph
Monograph (alternative title)
Date
2026-04-17
Publisher
Journal title
Child Psychiatry & Human Development
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Volume
Pages
Pages
DOI
ISSN
0009-398X
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Weblink
https://link.springer.com/article/10.1007/s10578-026-02013-7
Access date
2026-04-17
Abstract PL
Abstract EN
Misophonia is a newly recognized disorder characterized primarily by negative multi-modal emotional responses (e.g., behavioral, attentional, somatic, interpersonal, and cognitive) to certain repetitive sounds and related stimuli, usually produced by other people. Previous research has found that adults with misophonia commonly report that it begins in childhood and can cause significant psychological distress and functional impairment at home, school, and/or work. However, little is known about the challenges and perspectives of those raising a child with misophonia. Therefore, the purpose of the current study was to investigate the impact of caring for a child with misophonia, specifically in a sample of caregivers reporting any financial strain. We surveyed adult caregivers of people with misophonia (N = 22) to collect both descriptive and qualitative information. Using guidelines for reflexive thematic analysis [5], several themes emerged: (1) Household Impacted, (2) Caregivers Impacted, (3) Financial Impact of Misophonia, and (4) Non-financial Barriers to Care. This study highlights some of the challenges parents experience and explores shortcomings in treatment, advocacy, and awareness to inform misophonia researchers and clinicians on how to best support families raising someone with misophonia.
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Keywords PL
Keywords EN
Misophonia
Lived experiences
Caregivers
Financial strain
Reflexive thematic analysis
Keywords other
Sustainable Development Goals
SDG 3. Good Health and Well-being
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URI
https://share.swps.edu.pl/handle/swps/2310
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cc-by-nc-nd
Except as otherwise noted, this item is licensed under the Attribution-NonCommercial-NoDerivatives licence | Permitted use of copyrighted works
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